Leadership comes in many shapes and forms. It no longer looks only like a single standing figure (usually tall, male and white) if it ever did.
Globally, we still need more diversity in who we see in our programmes, on our stages, on the walls of the galleries, around tables, in meetings, on the Zooms. Each country will have its own unique issues and its own unique barriers. Yet we all need more direct representation from disabled people within our arts sectors and ecologies, but we also know that’s not the only way to lead.
This pandemic has showed us other places where influence also lies. We know about the whisperers – both the formal and informal advisors; those who lead by sector expertise; those who can galvanise communities and amplify their demands; the power of demonstration, the power of social media and those who seem to influence simply because of who they know.
Disabled people, in the arts and other spaces, have been claiming territory across all these domains. Look at the way UK’s Lisette Auton reminds us that this new online world is not inclusive of all, Australia’s Caroline Bowditch reminds us just how resilient disabled people always have been, Singapore’s Lily Goh in has pivoted her YouTube channel to both ensure Deaf people have access to relevant information and also teach sign to others, and Canada’s Ophira Calof, Kaileigh Krysztofiak and Dawn Jani Birley present solution finding as the norm, to name but a few. In the UK, disabled artists and cultural leaders have come together under the hashtag #WeShallNotBeRemoved, forming an alliance to ensure the disabled voice is heard as the country plans for the ‘new normal’.
As experts by experience in adaptation, social restriction and on-line access – largely due to the inaccessibility of the world before – we have been able to use that knowledge and hard-earned wisdom to help others and challenge those that seek to make ‘the new now’ inaccessible too.
Is leadership different now? Is the door opening up more easily to us? Will it be different in the future? Will it stay open or do we need to wedge it now?
We have shown that there are many, many ways to lead. You do not need endless energy to lead. That you do not need to do so alone. That our unique ways of being in the world can be seen as advantages and not disadvantages, can provide new perspectives and allow new insights.
It will be interesting to see what sticks and what does not. Whilst we are in lockdown, I am more equal. My fatigue that is exacerbated by travel, is lessened at home and, with captions, I can attend and follow the Zooms and the Teams and the others and contribute. I can also go sit in my greenhouse and stick my feet in a paddling pool if they swell.
The equality of those spaces and the urgency of our times has made me bolder too, less cautious to say what I think. Perhaps too this comes from my lived experience?
Being on the shielding list in the UK means anticipating seismic changes in any work-based risk assessment – what happens if I get ill, or get really ill, or die? Facing up to, and planning for, these possibilities is horrendous in theory but I have found it strangely satisfying in practice, and ultimately confidence building. I believe it will make me imagine new riskier possibilities more readily in the future, be more prepared to imagine the unimaginable.
I am aware of more disabled people being invited to more meetings to talk about the future – although the disabled people are still the same ones and the meetings are often not the ones from which decisions are made. I’m also aware that the decision to reopen in many countries is being driven in the name of commerce, rather than science. I was bored waiting to be asked for an opinion, so I developed a manifesto of my own.
We have to come to the fore, it is our time. We have to band together to make our opinions known, our voices heard. We wait in our individual homes, in our multiple countries, in our single world to find out what happens next. But we can take action, not wait passively. We can fight, influence and do whatever we can to ensure, as the International Disability Alliance says so clearly, that we move forward leaving no-one behind.